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Personal Health Records Are The Future

Google Health and Microsoft Health Vault are dead but PHRs are very much alive

It may not be “officially” official, but for most tech watchers it’s official enough: Google Health and Microsoft’s Health Vault are dead. In suspended animation, stasis, put out to pasture. Those mighty giants of tech have turned their focus elsewhere and are leaving their brief dalliances with PHRs (personal health records) to the wind and the weeds. Google Health and Microsoft’s Health Vault had attracted interest and excitement in their early days, and were even used in a VA trial of PHRs for service personnel. But the Goliaths’ inevitable abandonment of their PHR products is probably a good thing, and here’s why.

Personal Health Records Are The FutureFor PHRs or EMRs (electronic medical records) to be useful, they need to produce results. This means providing some measurable improvements in health over time: Health of individuals and health of populations. While solid proof that health IT can actually improve health over time is still being actualized, one thing is certain: Health information providers have to be in the game for the long haul. Personal health records and EMRs shouldn’t simply be a side-line venture, they need to be the main focus of the organizations that develop and maintain them. Having my health information easily accessible for a couple weeks, months, or years isn’t good enough. I, and my doctor, need to be assured that my info and the systems supporting access to it, are durable for the long haul. Health and healthcare are not part of Microsoft and Google’s core competencies, so they should steer clear.

Of course monsters like Microsoft and Google offer the potential advantage of offering free services, but Practice Fusion proves that smaller size is no impediment to innovation. Their growing community of EMR users spans 80,000 health care providers serving 10 million patients. Health IT is their focus, not a side-line. And their product is free (funded by advertising), a major advantage considering that the first-year costs to implement a typical EMR system is estimated to be $46,000 per physician or $233,000 for a 5-doctor practice.

Integrated into Practice Fusion’s EMR is a PHR option, something that should be required of all EMRs for a number of reasons including the following:

  • Improving health and managing disease has to be a cooperative effort between doctor and patient, so both parties need access to clinical information.
  • Its hard to imagine efforts at providing ethically-based, patient-centered care such as ACO’s and medical homes succeeding without patient-accessible medical records.
  • We all know that patients are already on the internet searching for health information, much of it of dubious validity. Why not empower them with the access to the actual data that is the story of their (clinical) health.
  • My medical records should belong to me. This means I should have timely and easy access to them.
  • PHRs seem like a prime means of abiding by federal “meaningful use” guidelines that call for clinicians to provide clinical summaries, and requested medical records to patients.

And speaking of meaningful use, if regulators are really serious about the value of EMRs, why not allow physicians who opt for free systems, and providers of free systems such as Practice Fusion, have access to some of the $20 billion in funding aimed at offsetting implementation costs? These incentives cap-out at about $63,000 over five years per practice, but the idea that incentives are only available to folks who invest in high priced systems seems like a strange value proposition. Especially if that high price may be unnecessary.

Ano Lobb, MPH
Health Writer,
Instructional Designer,
Master of Health Care Delivery Science Program,
Dartmouth College

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  • http://www.excellencenursing.com Danielle

    I believe we are all moving in the right direction which is patient focused care. Of course in health care we do not adapt to change well and we continue to lose the big picture which is collaboration for better patient outcomes. If a MD could care for a patient by him or herself then other care providers would not be needed. I fear we are going down a road where Quality is lost. As a nurse who has worked on medical floors, quality and safety, research and then went on to open a private home care company in one of the health cares most respected cities Boston as a MGH nurse. At every point in my career I have felt my patients pain because of our poor ability to collaborate. There are many factors in the demise of healthcare systems but I believe in myself and my colleagues to cross the healthcare barriers and allow others to break us down to rebuild us. Most health care workers believe in the code of ethics we strive to improve and we know our systems are failing our patients. At the end of the day our patients are consumers and they have a voice and need to be heard. I appreciate all the intelligent professionals that have put their hearts and souls into helping us maintain the ability to see our failures and preserve. Because without our health we can not change the world!

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  • Ano Lobb @healthyrx

     Danielle, one of the concerns I have with HealthIT is that it sometimes seems to be a focus in and of itself, often in absence of evidence that it can improve health outcomes in the ways that we hope it will, or without even defining what key health-improving or sustaining tasks it should be expected to perform. The IT or technology will never replace the people, since healthcare is above all else the art and science of caring.  Simply dropping even the best integrated IT system into practice won’t achieve what we hope without related efforts to improve and integrate it into the process of care, and of course involve practitioners and patients at every step of the implementation process.

    Might a cloud based system such as Practice Fusion help break through some of the current IT silos that are being created by more traditional EMR solutions, where doctors in different practices or systems might not be able to access patient information?

    How might HealthIT help you as a clinician provide better care? Improve collaboration and outcomes?
    What’s your take?

  • Ano Lobb @healthyrx

     Danielle, one of the concerns I have with HealthIT is that it sometimes seems to be a focus in and of itself, often in absence of evidence that it can improve health outcomes in the ways that we hope it will, or without even defining what key health-improving or sustaining tasks it should be expected to perform. The IT or technology will never replace the people, since healthcare is above all else the art and science of caring.  Simply dropping even the best integrated IT system into practice won’t achieve what we hope without related efforts to improve and integrate it into the process of care, and of course involve practitioners and patients at every step of the implementation process.

    Might a cloud based system such as Practice Fusion help break through some of the current IT silos that are being created by more traditional EMR solutions, where doctors in different practices or systems might not be able to access patient information?

    How might HealthIT help you as a clinician provide better care? Improve collaboration and outcomes?
    What’s your take?

  • Mark

     uh… maybe not so fast.  Claiming that HealthVault is dead does not make it so.  Microsoft is in the healthcare industry in a big way, and they are doing some innovative stuff with HealthVault, it has a strong pulse.  Recent additions are the Direct work and the ew image (mri, xray, etc) stuff )   Google, not so much.   HealthVault is a datastore that the consumer owns and can add, change, update, modify, take with them anywhere they go.  There is a big difference between a healthcare portal that gives me some level of access to the records in my current doctors EHR and my life-long PHR.  

    • Ano Lobb, @healthyrx

      Mark, thanks for weighing in.

      Some factors that make me question the sustainability of the patient-maintained PHR:
      PHRs should be viewed as decision-support technology for patients, just as EHRs have decision-supportive elements for clinicians. But in ordered for this to be the case, they have to allow timely access to information that is reliable, trusted, and current.

      Any informational database that’s left to languish will eventually die (remain unused). 

      Based on those two assertions, how does information get from a clinical evaluation or lab test into the PHR? Is it manually entered by the patient? Is that a reliable and sustainable way to keep such a database current and accurate? I’m not sure I’d take the time to manually enter all the information from my latest blood-workup, and the only way my doctor provides it to me is if I request a copy, and they mail me a paper copy.

      PHRs linked to clinically updated EHR essentially are self-updated, and the data should be as accurate as the clinician entering it. PHRs potentially also offer the opportunity to serve as a patient portal to reliable, trusted, evidence-based health information to help them manage their conditions. 

      In my next blog posting I’m touching on this very aspect, and would love to hear your opinion!

      Ano 

      • Mark

        I currently have a patient portal view into my health records at Palo Alto Medical Foundation.org (parm.org).  But 
        1.  I’m in a PPO, and I can go to a doctor outside of PAMF – which means that doctor can’t see my records at PAMF and PAMF can’t see the records at that doctor/specialist. 
         
        2.  I track my weight, blood pressure and glucose on my own using devices that need to automatically add their output to my health record.  I may want to show this information to my doctor during my precious 20 minutes I have with him once or twice a year.   In a way that he can see it in context with my official clinical records. 

        3.  I’m changing jobs and have to go to a different plan, which means a new doctor, and a new EHR – I’m dreading the effort I will have to go through to get my records out of PAMF and to the new doctor.  Even if they both use Epic, I can only imagine it won’t be easy.   As long as health care is so tightly tied to employment – in today’s job market this will mean changing providers will be a constant. 

        4.  They are my health records, not PAMF’s, not Kaiser’s.  There should be a law that mandates the Blue Button approach to automatically “flowing” data from the EHR at my doctor’s office to my PHR and the reverse. 

        5.  There are many creative technology companies that want to make money by helping me to live a life style that keeps me healthy, but they need my health data to do it right.   I don’t want to be duplicating my data to use a powerful new health management tool.   If it’s locked up in my EHR or PHR linked to my EHR, then I need to start over with another copy to leverage their creativity and solutions. 

        6.  The HealthVault concept  evolved to a mandated standards based in/out flow of data, solves all of these problems.   

        7.  If Practice Fusion had a consumer PHR that I could sign up for and use regardless of whether or not my doctor used Practice Fusion, and it met the above portability/ownership model, then that would be interesting. it is something I would pay for, something it would even make sense for my health plan to cover.  And I’d get the added bonus of going to a PF-enabled doctor for an even more seamless healthcare experience.   

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